Hello to all, it's been a bit and I have truly missed being a complete part of all of you.
I have gotten on and checked in quickly here & there but my heart has honestly not been able to focus on much.
I've not been able to sit still for long moments, too much energy and too many thoughts to try and relax.....this morning seems a little better and I am going to try to enjoy all of your posts that I have missed.
I want this blog to be a happy place....I truly do....I am truly trying
But I again reach out to all of you for prayers & good energy for my family
I am a strong woman
I keep telling myself that even when I feel as if my legs are about to buckle underneath me.
Please be patient and know that soon I WILL have all the wonderful simple things that everyday brings back again.....I will share my simple life of stitching and creating.
Just a little longer.....hopefully just a little longer.
My oldest son was just diagnosed with Autism and I encourage all of you to understand and look for the symptoms in your own loved ones....what a difference knowledge can make.
We have been misdiagnosed for 20 years, accepting Tourette's Syndrome as a final diagnosis when he was in 4th grade.
Let me tell you it was no easy task to get there either.....the medical profession can really let you down. Upon my last visit with a FORMER pediatrician I was advised to "Take him home and give him a good whooping to get some respect back".
NEVER went back....only to pick up his medical records.
Doctors, specialists, therapists......good days, bad days
And now we start all over from scratch to help him.....funny that the symbol for Autism is puzzle pieces, honestly it's all falling together like the pieces of a puzzle, it all makes sense now
If only we had know all those years ago, what a difference it would have made for us now......
It is all such a mess....
He is beautiful, he is gentle, he is kind
He is scared
And so are we
This road we are traveling will hopefully bring us strength and hope and most of all security.
PLEASE pray for him right now....pray for us as we are walking into the dark right now and need some light
Each day will get us beyond the last and closer to the next...we have a long way to go but I have to have faith that everything will work out.....I will fight for my child.
Thanks so much for letting me open my heart once again, I promise you that I will be bringing happiness here again in the near future.....my tears are building a rainbow for Josh
Miss you all.....love your family and enjoy each blessed day together
~Kriss~
I have gotten on and checked in quickly here & there but my heart has honestly not been able to focus on much.
I've not been able to sit still for long moments, too much energy and too many thoughts to try and relax.....this morning seems a little better and I am going to try to enjoy all of your posts that I have missed.
I want this blog to be a happy place....I truly do....I am truly trying
But I again reach out to all of you for prayers & good energy for my family
I am a strong woman
I keep telling myself that even when I feel as if my legs are about to buckle underneath me.
Please be patient and know that soon I WILL have all the wonderful simple things that everyday brings back again.....I will share my simple life of stitching and creating.
Just a little longer.....hopefully just a little longer.
My oldest son was just diagnosed with Autism and I encourage all of you to understand and look for the symptoms in your own loved ones....what a difference knowledge can make.
We have been misdiagnosed for 20 years, accepting Tourette's Syndrome as a final diagnosis when he was in 4th grade.
Let me tell you it was no easy task to get there either.....the medical profession can really let you down. Upon my last visit with a FORMER pediatrician I was advised to "Take him home and give him a good whooping to get some respect back".
NEVER went back....only to pick up his medical records.
Doctors, specialists, therapists......good days, bad days
And now we start all over from scratch to help him.....funny that the symbol for Autism is puzzle pieces, honestly it's all falling together like the pieces of a puzzle, it all makes sense now
If only we had know all those years ago, what a difference it would have made for us now......
It is all such a mess....
He is beautiful, he is gentle, he is kind
He is scared
And so are we
This road we are traveling will hopefully bring us strength and hope and most of all security.
PLEASE pray for him right now....pray for us as we are walking into the dark right now and need some light
Each day will get us beyond the last and closer to the next...we have a long way to go but I have to have faith that everything will work out.....I will fight for my child.
Thanks so much for letting me open my heart once again, I promise you that I will be bringing happiness here again in the near future.....my tears are building a rainbow for Josh
Miss you all.....love your family and enjoy each blessed day together
~Kriss~
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Kriss, my 16 yo has Asperger's, a form of autism. I know exactly how you feel. Though when I was told I was more at peace. Reason is I now knew then what we would be up against. Let me tell you is was a fight to get the diagnosis. For the first 12 years of her life we thought it was ADHD and anxiety. Schools that would tell me I was just over protective and I needed to lay off and that she didn't have a problem and would grow out of it. Whatever! My daughter is now 16 and after my search I found out last Friday she is eligible for services through the Board of DD here in my county. And to think I was told she didn't have anything wrong. Seriously girl I will call if you would like just email me you # again. I think I misplaced it. Hang in there!!!!
ReplyDeleteLifting you and your son in prayer. May you find comfort in finally knowing. TRY to give your cares, hurts and struggles to him. I know its easier said then done. But it really helps me to know someone else can carry some too.
ReplyDeleteBig hugs to you Friend!
Trace
www.grannytracescrapsandsquares.com
Dear Kriss...pleas never feel that 'we aren't here for you'...that's what I love about our blog community. We share and feel.
ReplyDeleteI am so sorry you and your family have had to deal with incompetent diagnosis's over the years. What a frustration it has been.
I pray for all of you that things will now go smoothly and the road will be much straighter!
Hugs, Karen
Hi Kriss,
ReplyDeleteSo sorry it has taken so long for doctors to get the autism diagnosis correct. My daughter is a teacher/therapist in a school for children with autism. Through her I have learned a lot....
I know how hard it can be on the parents, but at least now with a proper diagnosis you can take the steps needed. I know your son is a beautiful person, and I wish you all the best. I am sure I can speak for all of your blogger friends when I say that we are here to listen and help as best we can. Hang in there!
I will pray for you and your son.
Sorry to hear that you are going through rough times. My heart goes out to you and your son. Keeping you in my thoughts and Prayers. take Care!
ReplyDeleteOh Sweetie - I am truly sorry to hear of this...I am glad that you finally have a diagnosis, though, and can move forward with knowledge and, hopefully, qualified guidance and your son can get the help, understanding, and acceptance he probably so desperately needs at this point. I will pray for you, your son, and your family....And please don't ever think that blogging is just for "happy things"....I prefer to know the whole person...and there are very few who only know joy in their lives. Wishing you strength in your faith my friend....Hugs & Blessings ~ Robin
ReplyDeleteOh my sweet Kriss. You,your son and your family are in my prayers. Stay strong through the sorrow and thank the Lord you're on the right path now.
ReplyDeleteHugs~Carol
Sweetie~ Good to know the real issue after all these years.You'll work through it.Josh is still the same person he was yesterday you just have a better understanding.I'll keep you and your family in my prayers.Renee (recollecting the past) may be a good person to talk to as she has been through it.Big hug for you!~Amy
ReplyDeleteOh Kriss, I'm sending all my hugs and prayers to you and your family! I know how hard and long it can take to get a diagnosis especially with Autism. A friend of mine who's daughter has the same disease as my son is exibiting the same characteristics as Austism on top of everything else and nobody seems to know what is going on :( At least you have a diagnosis now and can go from here, your son is a beautiful person and you are a wonderful parent! Please know that we are thinking about you and take care!
ReplyDeleteHugs and blessings, Trish
Kriss, I'm so sorry it took so long for you to find out. My prayers and thoughts will be heading your way. May you find some peace in all this.
ReplyDeleteBlessings to you all!
We'll be here for you.
Robin
Oh Kriss, somehow I have missed a few posts.
ReplyDeleteMy sweet friend you, your son, and family are in my prayers now and always.
Don't worry about us, we will always be here when you have time.
Take care of you and yours that is what is important.
We will always be here when u return.
Hugs And Prayers Sweetheart,
Tam